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How do you explain Ehlers-Danlos syndrome?

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How do you explain Ehlers-Danlos syndrome?

Ehlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your joints loose and your skin thin and easily bruised. It also can weaken blood vessels and organs.

How do you explain hypermobile Ehlers-Danlos Syndrome?

Hypermobile Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. It is generally considered the least severe form of Ehlers-Danlos syndrome (EDS) although significant complications can occur.

What does Ehlers-Danlos syndrome affect?

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications.

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Who is most likely to get Ehlers-Danlos syndrome?

Most are rare e.g., 1 in 40,000 – 200,000 and some are ultrarare i.e., less than 1 in a million people. Individuals of all racial and ethnic backgrounds are affected by EDS which can present with complications from birth and progress over time.

Does Ehlers-Danlos run families?

Mutations in a variety of genes may lead to EDS; however, the underlying genetic cause in some families is unknown. Depending on the subtype, EDS may be inherited in an autosomal dominant or an autosomal recessive manner. There is no specific cure for EDS.

At what age is Ehlers-Danlos Syndrome diagnosed?

The age at first diagnosis peaked in the age group 5–9 years for men and 15–19 years for women (see figure 2). There was a significant difference of 8.5 years in the mean age of diagnosis between men and women (95\% CI: 7.70 to 9.22): 9.6 years in EDS (95\% CI: 6.85 to 12.31) and 8.3 years in JHS (95\% CI: 7.58 to 9.11).

What is hypermobility in a child?

Hypermobility refers to an increased range of movement in multiple joints, for their age. It is extremely common in children, having being reported in 25 to 50\% of those younger than 10 years of age. The older you are the less likely it is you will be hypermobile.

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What is the difference between hypermobility syndrome and Ehlers-Danlos?

While hypermobile EDS (hEDS) remains the only EDS without a confirmed cause, the criteria for hEDS diagnosis have been tightened compared to the 1997 Villefranche nosology as determined by international consensus. The essential difference between HSD and hEDS lies in the stricter criteria for hEDS compared to the HSD.

Does Ehlers Danlos run families?

Is EDS a sleep disorder?

EDS patients are known to suffer from significant sleep problems and excessive daytime sleepiness. EDS-features such as increased pharyngeal collapsibility have been proposed to cause obstructive sleep apnea (OSA), however this has not been investigated.

Can kids with EDS play sports?

Contact sports, such as soccer, football, and rugby, generally should be avoided. High-impact activities also should be avoided by most patients with EDS. These include running and basketball. Baseball, which requires a lot of running, also should be mostly avoided.

What is the life expectancy of someone with Ehlers-Danlos Syndrome?

People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.

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Are there any natural treatment for Ehlers Danlos?

Exercise and Mobility. It might sound counterintuitive,but even when you have a lot of joint pain,the best thing you can do is get those joints moving.

  • Addressing Chronic Pain.
  • Osteopathic Manipulative Treatment.
  • Cognitive Behavioral Therapy.
  • Mobility Assistance and Other Aids.
  • Alternative Medicine Approaches.
  • Diet and Nutrition.

    • Is Ehlers Danlos an autoimmune disease?

    No. Concern for Ehlers-Danlos as an autoimmune disorder should be put aside. It is a genetic disorder whereby connective tissues are more lax than in normal people. Consequently, body joints gave exaggerted Rnges of motion, and are prone to permanent ligament damage/laxity & generati& widespread body regions pain. .

    Is Ehlers Danlos contagious?

    Ehlers-Danlos syndrome type VI is not related to infection. About contagion and contagiousness: Contagion and contagiousness refers to how easily the spread of Ehlers-Danlos syndrome type VI is possible from one person to another. Other words for contagion include “infection”, “infectiousness”, “transmission” or “transmissability”.

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